There has got to be more GW vets that has had something similar to this in Gulf War Illness Forum

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There has got to be more GW vets that has had something similar to this

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cibjr91

There has got to be more GW vets that has had something similar to this

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Posts: 419

Sep 23 10 6:13 AM

I have a situation that has been wearing me down a bit. I went to a private physician to see if I can get help with the chronic joint and muscle pain, chronic fatigue. He had me give 5 tubes of blood. Then I get a call that I need to go and pickup some antibiotics. I didn't question it. I think I have an infection. I go and pickup my antibiotics and it is a total of 1000 mg. The pharmacist tells me that I have H-Pylori bacteria and still am not questioning why I am taking so much antibiotics. Then about 30 days after the blood results were in I get a envelope with a business card on my front door. It had my name on it and that it was urgent and that I call ASAP. It was from the city metro health district. They asked why I had my blood checked and asked if I knew that my blood had tested positive for syphilis. I was in shock and felt like I was on trial. She asked me very personal questions and told me that I have to go in and give another blood test to confirm. I went downtown and gave a urine specimen and blood. I was there 4 hrs. They asked me more questions and I was in so much shock I could not even put my words together to make sense. I just told them that I was a Gulf War vet and that my health was getting worse and that I am seeking treatment for all my symptoms. The blood came back negative and was in the clear at that time. Then they said they will send it to another lab to confirm the result and I will get a call in 5 days. I get the call and it was also negative. Has anyone gone through this?

Edited 1 time by cibjr91 Sep 28 10 1:30 PM.

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Dana

#1

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Posts: 94

Sep 23 10 11:28 AM

It hasn't happened to me.

I would have more than a few 'choice' words for my doctor!!!!! If they had to report it to the health department, then you should have received a phone call!!!!

Dana

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cibjr91

#2

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Posts: 419

Sep 23 10 10:22 PM

Yeah the doctor apologized for what happened and said that the lab had to follow protocol and notify the health district.

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branman

#3

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Posts: 730

Jun 7 12 3:22 PM

I know this is a old post but I just had my colonoscopy/endoscopy on Tuesday and the biopsy came back positive with H. Pylori as well. She told me that it is the cause of my ulcers and that it is not the old thinking that ulcers are created from stress. She told me that it can only be contracted from food and water. I have had this for a longgg time. Ever since I got back form Saudi I've had these stomach issues. This confirms the fact that our water and food were contaminated with this bacteria, I'm thinking the water that we got to wash out bodies, wash our clothes and especially our drinking water that we got from over there plus the food as well.

Now I have to do what Cibjr91 had to do and take these powerful antibiotics and a drug, I forgot the name of it for 6 weeks and change my diet to a alkaline diet and eat nothing but vegetbles and non acidic fruits. I've been doing this for awhile anyway so just gotta beef up on it even more now. Also as I posted in another post will be on the cabbage juice regimen for 2 weeks like I did 21 yrs ago to clear the ulcer along with ohter natual products like probiotics, Manuka Honey, Turmeric, etc. then deal with the bacteria. This is very important because it is contagious and if you have the reflux it can live in your mouth and travel to your lungs, cause migraine headaches, cause muscle and joint problems. Could this be the culprit that plague us? I don't know but I will be taking this very serious since this thing can cause soo many problems in not just the digestive track but in other systems too. She also said that if I still have the problems after the 6 weeks then it will be diagnosed under IBS as well.

So if you have gas, constipation, belching, abdominal pain, diarrea, reflux go get checked for this bacteria either through a breath test or a endoscopy. Will keep updates on how this goes. Very disturbing.

SSDI awarded,
70% PTSD , 40% Fibromyalgia, 30%IBS= Total Awarded 90%

Granted 100% TDIU

One Does Not Have To Be Evil To Do Evil Because Good Men Only Have To Say Nothing Or Do Nothing...

Peace and always much unadulterated Love
Thanks For Your Service
Branman

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lsullysr

#4

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Posts: 690

Jun 7 12 5:45 PM

I had an Endoscopy and the biopsy also came back positive for H. Pylori. This was in February 2011.

I did a lot of research on H. Pylori, and true it is contracted from food and water, and is also contagious. So I thought of all the 3rd world countries I had been to during my military career, and there was no way I could track it down to one specific place.

When my wife had her annual physical, she was found positive for H. Pylori, so I had to be tested again, luckly negative.

After the H, Pylori was cleared up, my stomach issues actually became worse for a period of time (pain). Now, my IBS issues are back to where they were for the past 20 plus years, ulcers are the same, GERD is worse, fatigue is worse, migraines about the same, fibromyalgia is worse. But, I am sure the worse stuff comes with age and inactivity. Since June 2011, I have not had the energy to do much of anything, and docs don't know why.

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brewha44

#5

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Posts: 996

Jun 9 12 4:36 PM

I also tested positive after service! Did the treatment! I have had 2 endoscopys and just had a third friday! Have been negative since, hope this one is the same! When i left service ,i felt like i had arthritis in my joints for a year! I just thought it was from being in very physical units! Interesting! I was treated with Clarithromycin and Prevacid combination!

Edited 1 time by brewha44 Jun 9 12 4:39 PM.

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cibjr91

#6

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Posts: 419

Jun 14 12 8:19 PM

Hey guys it has been since 2010 that I had h-pylori and 3 mos. after this incident I was dx with CFS and then in Aug 11 I dx with Fibro. I have had many blood tests since the pylori incident and have been negative. I still am tired and fatigued, muscle and joint pain, morning stiffness, numbness and tingling in arms, hands, legs and feet every day. I had to quit my job Oct '11 and nothing has changed. I told my PCP that I wish I was dead and he almost sent me to mental health. We all have the problems and we to keep seeing our PCP's and if possible see civilian docs and paper trail everything get doc notes copies of MRI scans and keep talking to your VSO's and every 90 days send in a statement in support of claim and give status of your health and how it is affecting your quality of life. I just started to do this today. I will not stop fighting and I hope you do the same. Thanks everyone for your service and never give up.

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branman

#7

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Posts: 730

Jun 15 12 9:56 AM

Cibjr91 man, hang in there. It can be rough most days and I have mentioned to my wife that I will be glad when this life is over with for me with all of this suffering and pain. When one thing seems like it's trying to fix itself out , here comes another at full force. I don't want to kill myself by I feel like I'm going to die sometimes. All we can do is do as much good in this life as we possible can, love your family and keep on keepin on.

I'm going down to the VA today for my checkup and turn in the pathology report along with the 4138 for the claim. Nothing has moved or changed on ebenefits lately, I think they are overwhelmed with claims. I'm gonna give it a few more months then start making phone calls and send in a IRIS to find out the status. Peace brotha, and hold your head up, I hope you got a good hobby.

SSDI awarded,
70% PTSD , 40% Fibromyalgia, 30%IBS= Total Awarded 90%

Granted 100% TDIU

One Does Not Have To Be Evil To Do Evil Because Good Men Only Have To Say Nothing Or Do Nothing...

Peace and always much unadulterated Love
Thanks For Your Service
Branman

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lsullysr

#8

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Posts: 690

Jun 15 12 10:16 AM

I think it's a broken record for most of us (same illnesses, symptoms, and overall health issues).

I filed my first claim in April 2011, and by that time my health was going down hill fast. I had to quit work in June 2011.

So far, I have a diagnosis for CFS, IBS, Fibromyalgia, Chronic Daily Tension Headaches, Chronic Migraine Disorder, DDD, and MDD Secondary to all the other issues, and like you cibjr91, there are many days when I wish I would just die, and I did get referred to mental health.

U.S. Army Retired (1971-1991)
100% P&T (SMC-S)
"If you have never made a mistake, you have never done anything". (Author Unknown)

Edited 1 time by lsullysr Jun 15 12 12:04 PM.

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MadDogSmitty

#9

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Posts: 81

Jun 16 12 2:26 AM

cibjr91 wrote:
Hey guys it has been since 2010 that I had h-pylori and 3 mos. after this incident I was dx with CFS and then in Aug 11 I dx with Fibro. I have had many blood tests since the pylori incident and have been negative. I still am tired and fatigued, muscle and joint pain, morning stiffness, numbness and tingling in arms, hands, legs and feet every day. I had to quit my job Oct '11 and nothing has changed. I told my PCP that I wish I was dead and he almost sent me to mental health. We all have the problems and we to keep seeing our PCP's and if possible see civilian docs and paper trail everything get doc notes copies of MRI scans and keep talking to your VSO's and every 90 days send in a statement in support of claim and give status of your health and how it is affecting your quality of life. I just started to do this today. I will not stop fighting and I hope you do the same. Thanks everyone for your service and never give up.

yeah man hang in there. I am in the same boat too. exactly the same symptoms. i am not going to off myself but I totally know and understand the feeling of wanting to be dead rather than keep feeling this pain and fatigue. i am struggling to work, and having to cut corners to get by on the job. there is such a list of things i need to get done at home but my days off come and go and I never get anything done because I feel so bad. still waiting and hoping on my appeal

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pgwvet

#10

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Posts: 1406

Jun 19 12 1:23 PM

brewha44 wrote:
I also tested positive after service! Did the treatment! I have had 2 endoscopys and just had a third friday! Have been negative since, hope this one is the same! When i left service ,i felt like i had arthritis in my joints for a year! I just thought it was from being in very physical units! Interesting! I was treated with Clarithromycin and Prevacid combination!

Damn how do you get by with only two scope since the war?? I get one every 3 years. My gut must be a mess. They have me on two meds for it.
I have changed my diet and things that has helped a lot. do not do mint of any kind it will only make things worst.
There is a lot of other thing I have done over the year, I have it livable at most times, but things do come up.
Yes I do have a VA Dx of IBS, GERD, FM, CFS and a list of other things.

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