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Jan 15 11 6:24 PM
If there are any vets out there with Sarcoidosis having trouble with there claims you may chat with me. I have had Sarcoidosis since 1978. I finally was awarded 70% Unemployability P&T in 2004. I also won my SSDI case in Jan 2006 at a ALJ Hearing. I have Sarcoidosis with Peripheral & Central Nervous System with cardiac involvement. I have a Pituituitary Tumor and CPA Tumor. Ray Williams, CPO< USN (ret)
Jan 15 11 7:00 PM
First let me say hello to the group of vet's here living with sarcoid. I too was diagnosed with it in 1985. I was lucky enough to have a lesion noted on my Discharge physical enabling my case to be service connected. That and the fact I developed full blown pulmonary, skin, and joint involvement less than 5 months after my discharge date made a ruling simple... (within in a year/noted in service records). Now to the point. I am becoming more experienced and educated about the VA disability system because I am now a registered nurse and working for the VA assisting vets with housing, obtaining benefits, and substance dependency. I believe if you have your medical service records review them for anything which can connect your illness to sarcoid to active service time. If you don't have your records request them. Secondly, look to your private medical care which was given within 1 year of your discharge. Even if pass the one year mark, file anyway. Working with Vets comming back, from the current conflicts as well as Viet Nam era vets I have noticed many vets with similar symptoms to sarcoid. Also, several of the service people have come from the same units performing similar type work. Disposal of chemicals, arsenals, or in contact with burning fuel, (oil wells). I believe as with the case of the Agent Orange vets, it will take a lot of connecting the dots until we are fully awareof the connections between the environmental job contacts and the development of sarcoid symptoms. I am not a expert by a long shot but I have educated myself by reviewing appeal cases specific to my disease.Go to Department of Veteran's Appeals and type in your specific ailment. Studying this cases has helped me to understand what the VA looks for in cases as well as how to write a claim request. Good luck, be patient, persistant, and increase your knowledge.
Jul 5 11 11:46 PM
Jul 6 11 12:34 AM
Cruiser I wanted to pipe in and give you some information on my case
As my long battle and journey began against VA that said you never had it during or 1 year after
I found out something through my doctor and attending the KISS patient seminars in Chacigo hey one of an early signs of Sarcoidosis in Caucasions is Sinusitis with out reason. Well after visiting with the doctor and presenting everything she gave me a letter that would not give the VA a leg for denial. sh gave me a letter of multiple mis dianosis and that in her professional opinon was 100% SC. What was the VA's answere we need ou to see a civilian doctor to confirm the original findings
Has anyone noticed that getting a SC or rating years later is alot harder?
I love when I go to the ER at the VA for Difficulty breathing or other problems and the doctors are so ingnorant that they tell me the same thing you can't have Sarcoid because your white
I find it hard to swallow as I listen to some of these people come in from OIF and OEF that never spent a minute in front lines or a Combat area but get 100% SC UE for PTSD just because they were over in the middle east.
Now that I take metho I can not qualify for health insurance or life insurance and really that is all I want.
Thanks for the moment to share but if you can tell me anything else that can help me please let me know.
Aug 16 11 12:29 PM
Aug 16 11 12:48 PM
I'm so sorry that you have sarcoidosis. Do you know what chemical gave you the sarcoidosis? I also have sarcoidosis my doctor always ask me have i been around a chemical . I always say no but it's alot of people who was in the army that has sarcodosis and related illness connected to agent orange. If you can please contact me need Help
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Dec 17 11 6:33 PM
I have spent twenty years or so with various lung problems told many times it was the remains of pneumonia finally diagnosed with sarcoids in 2000 I spent four years on aircraft carrier and viet nam I have read of high levels of sarcoids in deck grinders and such from the 70s I went through a yard period and spent much of my time around it I applied for benefits but the va screwed it up and put me in for asbestosis which I had no documents for so it was turned down
Dec 24 11 9:16 AM
I served in the Army from 1987 until 1994; being part of Operation
Desert Shield and Storm. I originally
filed a disability claim in 2009. A
short time later I was in the hospital undergoing a surgery for Degenerative
disc. During that surgery they
discovered a lymph node that look odd. A
biopsy was scheduled and resulted in sarcoidosis: Lungs and Esophagus.
I filed a claim for sarcoidosis in June or July, 2010
I was just notified (December, 2011) by a Service Officer, who works in
the regional office, that my sarcoidosis was now service connected at 0%
I had very little help with my claims from a service officer, but as I
recall the evidence I submitted supporting this claim was as follows:
The original surgery where the nodes were
History of my unit in the Gulf
Statement(s) from supervisors in the Army
I don’t think there was anything else.
In summary, dot give up and submit any evidence that you think is relevant
and material to your claim.
Dec 24 11 12:01 PM
Dec 25 11 9:53 AM
I see a pulmonologist once a year; he specializes in
Sarcoid. However, I agree once you have
been diagnosed you should monitor it. As
for the 0%...who knows. My guess is that
the VASRD states that you receive 0% if you are asymptomatic.
Dec 25 11 4:12 PM
If you are having additional problems, such as your back problems with lymph nodes, ask your PCP to refer you to specialty doctors, possibly Orthopedics, Neurology, Gastroentology, and opthamology, to ensure there are no medical issues that may have resulted (or occurring) due to the Sarcoidosis. For example, you may get some mild to really bad joint pain (such as in the knees, ankles and back areas) that comes and goes, or may have chronic joint pain. That may be a job for Orthopedics, not your PCP.Initially, my situation was the similar to yours, that is, was only seeing my Internal Medicine doctors/pulmonolgy doctors not referred to other doctors, and thinking everything is under that umbrella; for me, the Sarcoid "branched out" to other organs and I see the above specialists as needed or at least yearly due to my Sarcoid issues per their request. You really need to get your eyes checked every year, even if there are no symptoms occurring. I even see a Retinologist now due to my eye issues, such as Scotomas and numerous types of floaters, conjunctivitis, dry eyes, and swollen and enlarged lacrimal glands, because they want to ensure that there are no Retinal tearings floating around or other worsening conditions.Best of luck to you, please stay on top of your Sarcoid issues as best as possible.
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